Dylan got his new kidney!

Our experience with HD.

Do you ever just read a meme or watch a TikTok that happens to be everything you needed to hear in that moment?

It doesn’t happen often but sometimes surgeries do get cancelled. It’s quite heartbreaking when it happens, especially once everyone is prepared for the surgery to happen.

Have you experenced someone in a state of emergence delirium?

Have you ever had a nurse take that extra step to not only take care of your child, but to also take care of you? I did and I will forever be grateful for it.

Has anyone ever asked you if you feel like you were “chosen” to be your children’s parents? I have, and I wasn’t really sure how to answer that question.

I found documentation and preparing for appointments the best way to make sure everyone in my children’s care is kept on the same page as each other.

When it comes to feeding a child with medical concerns, sometimes it can be very frustrating. One of our renal dieticians helped answer some questions in hopes of making it easier.

Sometimes a photo doesn’t always give an accurate picture. With social media, many photos are staged nowadays and it can be hard not to compare when seeing them.

Buzzy Bee has helped comfort my boys when requiring bloodwork or injections. Such a simple gadget that works so effectively!

It just wouldn’t be the holidays for a medical mom if it didn’t include a hospital visit.

Cyanotic breath holding spells have been a horrific new experience for us.

Positive news is never just positive news. It carries so many more emotions all at once.

What a medical mom is, is a hard term to describe.

A medical mom’s ‘To Do’ list is always very long. Some days, we need to make a short and simple one to care for ourselves.

It’s such an awful feeling when you feed the bed rather than your child. I found a product that solved our problem!